Economic burden and profile of early social security benefits for multiple sclerosis in Brazil, 2014-2023

Resumo

Objective: To assess the economic burden of multiple sclerosis (MS) on the Brazilian
social security system over a 10-year period (2014 to 2023). Methods: Early benefits
(men: before 65 years; women: before 60-62 years) were analyzed and their distribution
according to age, sex, and region of residence was described. The economic burden con
sidered the quantity, duration (months), and costs (Brazilian Reais, BRL) associated with
each type of benefit. The duration of long-term benefits (retirement and social assistance)
was estimated by considering the average life expectancy in Brazil, with an adjustment
for the excess mortality attributable to MS, and projected up to the end of the observation
period and/or expected retirement age. Expenses were calculated by considering the du
ration and the number of minimum wages granted, adjusted for inflation through Decem
ber 2023. Results: From 2014 to 2023, 16,149 MS-related benefits were granted in
Brazil, of which 16,024 (99.2%) were early benefits (16,018 included in the economic
burden analysis), with an average annual rate of 7.6 per million inhabitants. The average
age at the time of benefit concession was 38.6±9.8 years. Among beneficiaries, 68.8%
were women, 42.9% were employed, 19.8% self-employed, and 90.3% lived in urban
areas. The total expenditure on MS-related benefits was BRL 657,247,720 during the
period, with an accumulated duration of 23,717 years (284,612 months). Conclusion:
Due to its disabling characteristics, MS is associated with early retirement and leaves
during the prime productive years, with a burden over BRL 657 million in ten years.